Your Past, Present and Future Self
Is your past self proud of you? How about your future self – do they get a high-five?
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What Would You Like For Christmas?
What Would You Like For Christmas? I can normally answer this question from Pete, my other half, pretty easily. There’s normally SOMETHING I’d like under the tree each year (shiny and pretty, ideally!) But this year is different. This year…
ME, Parenting and Pantomime: A Christmas Comparison
I took my son to see Sleeping Beauty in panto yesterday (as you can see, we were pretty excited!). The performance was fantastic. Afterwards, I got thinking about the everyday pantomime that is parenting with ME and POTS. And here…
Am I Okay?
Life with M.E and POTS: “It’s really hard but I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m struggling a bit – but I’m okay. I’m okay. I’m okay. I’m okay.” (Has a massive…
Birthday present
Presents You would think after being chronically ill with M.E and POTS for nearly six years that I would learn to tailor my present wish list for the life I lead now … not the life I used to lead.…
Going ‘Out’ Out
With the festive season fast approaching and people’s social calendars filling up – I just realised I can’t remember the last time I went ‘out’ out. What I do know is … it’s been many many years years. This blog…
Locating My Inner Cockroach
You know those annoying insects that never die? Like, no matter how many times you whack it, it just wobbles around with missing wings and limbs – refusing to die. Cockroaches I think. Anyways, between the chronic illness, infections and…
ME Can Mean – Recurrent Infections OR Superhuman Immune System
ME can mean – recurrent infections OR superhuman immune system. I’ve been both. The only perk to my ME so far over the years has been my superhuman ability to never (well, very rarely) get a cold or any other…
ME Can Mean – Difficulty Speaking
ME can mean – Difficulty speaking. I can normally find analogies to explain most of my symptoms of ME, but I really struggle to find one to explain what happened to me this morning: losing my ability to speak. It’s…
My Lovely Day Off … ?
My Lovely Day Off Everyone needs a ‘me day’ from time to time. Yesterday was mine. I was right looking forward to it. It got off to a great start. For the first time in 6 weeks (!!), I finally…
When the Storm Breaks
I’m showered! Thank fuck for that. Thought I’d update on how I’m doing today – and the answer is: much better. Not completely back to my version of normal (my stomach still feels very delicate) but certainly heading in the…
Crashing Fears
Really struggling – Day 5. I’m used to my symptoms fluctuating from one day to the next, and also within the same day. I’m used to my symptoms flaring up for several consecutive days after over-exerting myself. Sometimes it can…
Happy Birthday To Me!
Happy birthday to me! And this is a VERY special one. For those who don’t know, I was a HUGE gym junkie before I got sick. I was in the best shape of my life – radiating health, strength, and…
Sporadic Communication
The physical aspects of chronic illness can be brutal. But so can the cognitive aspects. Here, I discuss how brain fog causes my written communication to be so darn difficult.
Travel Worries
From June 10th 2022: And here’s the thing with chronic illness – you can’t just go for a trip away, with a worry-free mindset. Not even to spend a few days with family. Excited – definitely! But not worry free.…
Butterfly Days
From June 4th 2022: It’s been a rough 11 days since wedding dress shopping day. Health has been up and down, but mostly down. However, while that’s been going on, we had some chrysalides that hatched into beautiful butterflies a…
The Day After…
From May 25th 2022: Oooof, I feel rough today. As was totally predictable, my health is now paying the price for my big day out wedding dress shopping yesterday. I feel utterly hungover – except minus the alcohol, and utterly…
I Said Yes To The Dress!
From May 24th 2022: Today was such a momentous occasion for me (and my mum!) I’ve been waiting 4 years to go wedding dress shopping. Myself and Pete got engaged at a point when I couldn’t even get dressed –…
Millions Missing
From May 12th 2022: It’s been 4 years since Pete travelled to London with my trainers and stood up to tell our story at Millions Missing (while I was at home, pregnant, and too ill to go with him, my…
Holy Mother of …
From May 6th 2022 Is it nearly bedtime yet? I mean, my evening bedtime. Not my afternoon bedtime. (Anyone would think I’M the three-year-old in this anecdote). When I go for my afternoon bedtime, my son usually has some quiet…
Messy Play, Messed Up Me
From April 19th 2022 And here’s today’s chronically craptastic awareness raising anecdote: I took my son somewhere new to play today. He loved it – lots of variety with toys, sensory and messy play. It was fantastic for him. And…
