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Millions Missing

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Jun302022
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From May 12th 2022:

It’s been 4 years since Pete travelled to London with my trainers and stood up to tell our story at Millions Missing (while I was at home, pregnant, and too ill to go with him, my M.E having tipped over into ‘severe’ territory at that point). God, I love that man.

A lot has changed for me since then – and for the better. I’m happy to say I am no longer missing from the world outside my front door. But I am still missing from my career, and many other aspects of life that I took for granted when I was healthy.

But I am grateful. So, sooooo grateful for how far I have come. I have quality of life again. And my son has a mum who can do stuff with him. I could only dream 4 years ago of living the life I lead today. So, for that, I am eternally grateful.

This picture of the new gym trainers I never got to wear, is my reminder to never forget (as if I could!). Never forget what happened to me, or the fact that it could happen again. And to NEVER forget those who are still missing and need our help. We must continue to fight for recognition and research into this god-awful condition. Because M.E does NOT discriminate. It can happen to anyone of any age.

… Also, as the Manic Street Preachers once sang, “if you tolerate this, then your children will be next.”

To learn more about exactly what did happen to me, go to the My Story section or click here My Story with POTS and M.E. – chronicallycraptastic.com


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By EmmaJune 30, 2022Leave a comment

Author: Emma

http://chronicallycraptastic.com

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Hi there! I’m Emma. I’m the shit-head in the picture. A picture can say so much about a person, whilst also saying nothing. Well, nothing in this case other than: I clearly like lipstick and poo hats. So, now we’ve established how tasteful and stylish I am, allow me to tell you a bit about myself...

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  • The ‘Procedure’ Went Well … (albeit my face forgot to tell the camera that!)June 7, 2023
  • Surgery DayJune 5, 2023
  • PEM: The AftermathJune 2, 2023
  • Road TripJune 2, 2023

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