I’ve been a very busy girl of late. Busier than someone with ME/POTS should be. My body asked me to stop this week. So, I did – and this is when I started to notice stuff.
Last year, O asked me to knit him a ‘rainbow’ blanket – and I was happy to oblige! Now, 8 months later – this old dog is trying a new trick with said banket. And breaking my back in the process.
Sometimes, I can’t quite tell the difference between ‘lazy Sunday morning’ relaxed, and ‘your body doesn’t feel like doing much because you’re chronically ill and fresh out of spoons’ relaxed. This is when I make unwise choices about simple things … like showering.
Planning a wedding around chronic illness, as it pans out … is a logistical nightmare. Here, I highlight a few considerations we’ve had to navigate on the road to becoming Pete’s future wife.
The other day, I was waiting with the other parents at school pick up. I saw my friend and gave her a big hug and said, “Happy new year! Feels like I haven’t seen you in ages!” To which she replied, “we saw each other last week. We had a play date, remember?” … Oops.…
“God, you’re SO lucky. I wish I struggled to brush my teeth sometimes and had to choose between a shower or a social life. How can I make this happen for me?? I want it SO badly!” … said no-one ever. This is one reason why my blog is unlikely to ever win any popularity…
APPARENTLY, I’m ending 2023 on a high.
… A sugar high.
Still, aside from stuffing my face with enough chocolate, mince pies, and cake to induce a diabetic coma – I think I can confidently say, this year has been a good one for me health-wise.
If M.E has taught me anything, it’s that time is not a given. That, and fear of relapse is a real head-fuck.
Most people with M.E and/or POTS have SOME sort of aid they simply cannot live without. Mine is my earplugs.
So, I’m in this not-so-fun predicament today where I kinda need to choose between my partner (Pete) or my five-year-old son (O). Hmm …