Presents You would think after being chronically ill with M.E and POTS for nearly six years that I would learn to tailor my present wish list for the life I lead now … not the life I used to lead. … yet apparently, I’ve learned nothing. For my birthday back in August, I asked for…
With the festive season fast approaching and people’s social calendars filling up – I just realised I can’t remember the last time I went ‘out’ out. What I do know is … it’s been many many years years.
This blog highlights the difficulties and loss that I, and much of the chronic illness community – face around the topic of enjoying a night out – whilst also showing gratitude for the good times when I was healthy.
You know those annoying insects that never die? Like, no matter how many times you whack it, it just wobbles around with missing wings and limbs – refusing to die. Cockroaches I think. Anyways, between the chronic illness, infections and now Covid … I seem to have located my inner cockroach. I guess what I’m…
ME can mean – recurrent infections OR superhuman immune system. I’ve been both. The only perk to my ME so far over the years has been my superhuman ability to never (well, very rarely) get a cold or any other type of bug that’s been doing the rounds. (I mean, really, it’s the least my…
ME can mean – Difficulty speaking. I can normally find analogies to explain most of my symptoms of ME, but I really struggle to find one to explain what happened to me this morning: losing my ability to speak. It’s not the same as when you have a sore throat/virus and lose your voice. It…
My Lovely Day Off Everyone needs a ‘me day’ from time to time. Yesterday was mine. I was right looking forward to it. It got off to a great start. For the first time in 6 weeks (!!), I finally felt well enough to go to the gym. It was SO nice to workout again…
I’m showered! Thank fuck for that. Thought I’d update on how I’m doing today – and the answer is: much better. Not completely back to my version of normal (my stomach still feels very delicate) but certainly heading in the right direction. I’ve actually achieved things today. I finally did the food shop (several days…
Really struggling – Day 5. I’m used to my symptoms fluctuating from one day to the next, and also within the same day. I’m used to my symptoms flaring up for several consecutive days after over-exerting myself. Sometimes it can last a week or two. But knowing this, doesn’t make it any easier. I’ve had…
Happy birthday to me! And this is a VERY special one. For those who don’t know, I was a HUGE gym junkie before I got sick. I was in the best shape of my life – radiating health, strength, and wellness from every fibre of my being … and I LOVED it. Exercise was a…
The physical aspects of chronic illness can be brutal. But so can the cognitive aspects. Here, I discuss how brain fog causes my written communication to be so darn difficult.