Getting Wed … In Bed?!
Planning a wedding around chronic illness, as it pans out … is a logistical nightmare. Here, I highlight a few considerations we’ve had to navigate on the road to becoming Pete’s future wife.
Guess my memory has officially left the building:
The other day, I was waiting with the other parents at school pick up. I saw my friend and gave her a big hug and said, “Happy new year! Feels like I haven’t seen you in ages!” To which she replied, “we saw each other last week. We had a play date, remember?” … Oops.…
New Year, New Followers (Hooray!)
“God, you’re SO lucky. I wish I struggled to brush my teeth sometimes and had to choose between a shower or a social life. How can I make this happen for me?? I want it SO badly!” … said no-one ever. This is one reason why my blog is unlikely to ever win any popularity…
Ending 2023 on a High
APPARENTLY, I’m ending 2023 on a high.
… A sugar high.
Still, aside from stuffing my face with enough chocolate, mince pies, and cake to induce a diabetic coma – I think I can confidently say, this year has been a good one for me health-wise.
Crystal Ball Christmas
If M.E has taught me anything, it’s that time is not a given. That, and fear of relapse is a real head-fuck.
SHIT. My earplugs are breaking … PANIC!!
Most people with M.E and/or POTS have SOME sort of aid they simply cannot live without. Mine is my earplugs.
Chronic illness = letting people down.
So, I’m in this not-so-fun predicament today where I kinda need to choose between my partner (Pete) or my five-year-old son (O). Hmm …
Miracles DO happen!
Yesterday was a VERY rare day for me. I was almost entirely symptom free. And now, I’m just flabbergasted.
Six things I learned from my time in a wheelchair
Wheelchairs are great. We all know that. Still, as with most things in life … it’s not all spokey dokeys and rainbows. So, here are six crappy things I never knew until I found myself in a wheelchair for three years.
Compassion for … Compassion Fatigue?!
“All you ever talk about is your health.”
Have any of you had these hurtful words uttered to you? I have … and I’m guessing many of you have too.