A bit more about me
Hello my lovelies and welcome new subscribers!! I realised that I haven’t introduced myself properly in a very long time…
Look out for my ‘Welcome’ email! If you don’t receive it within 24hrs, check your junk/spam folder. Mark my address as safe and add to your contacts list. Then sit back and enjoy!
I was hidden away from the world, housebound, and unable to care for myself independently for 3 years due to having severe cases of two chronic illnesses: Postural Tachycardia Syndrome (POTS for short – a type of dysautonomia) and Myalgic Encephalomyelitis (ME for short – a complex multi-system disease with a wide range of disabling symptoms). ME is sometimes referred to as chronic fatigue syndrome/CFS. Personally, I can’t stand that name as it sounds a bit like ‘Very Tired Syndrome’ – which completely undermines the seriousness and complexities of the condition.
Needless to say, being housebound, dependent on others, and so unwell for so long was very isolating and at times, lonely. I had to cope with a lot during that time – the loss of everything I enjoyed, like my career (which I had worked really hard for), exercising (I had been a gym-junkie for many years), socialising (which I loved) – and essentially, the loss of my identity.
Hello my lovelies and welcome new subscribers!! I realised that I haven’t introduced myself properly in a very long time…
Newly diagnosed with ME? I covered a lot of the main ‘must know’ points in my last post – however,…
Newly diagnosed with ME? Wish you had a clue of what to expect going forward? I was in that boat…
Initial DNA results from the world’s largest DecodeME study are in – and the results are rather marvellous indeed! People…
“It’s really good after all these years and everything we’ve been through, that we can still vaguely enjoy each other’s…
I did something I haven’t done in about 9 years recently – and I was SO excited! … until my…
We made it to one year as Mr & Mrs! Whoop whoop! Here, I’ve created a short video and written…
Bike riding, along with a million other things, kinda went for a swim in the sewer of life when I…
I remember the very first time I came home to Pete. We’d been living together for three years by that…