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Going ‘Out’ Out

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Nov232022
Blogchampagne glasses, champagne bottle, spray candle-4732068.jpg
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With the festive season fast approaching and people’s social calendars filling up – I just realised I can’t remember the last time I went ‘out’ out. What I do know is … it’s been many many years years.

This is a common side effect of living with chronic illnesses ME and POTS.

It would be so nice – just for one night, to be able to get dolled up, go to the pub with friends, have a laugh, get a bit tipsy, and then maybe go on somewhere we can dance. You know, standing up – without feeling faint (something I’ll never take for granted again).

A night without limitations. A night where I can drink as much as I like of what I like, talk, listen and laugh without brain fog getting in the way of my ability to process information – and/or losing the ability to speak due to fatigue. A night where I’m not having to be constantly aware of my symptoms and whether I’m pushing my body too hard and setting myself up for a crash or relapse. A night where I’m not lightheaded, struggling with sensory overload, and exhausted to my very core. A night where I don’t have to clock watch and get home to bed before I cause any lasting damage to myself.

I haven’t done anything that wild in over 6 years. And I’m one of the lucky ones. Some people with M.E and/or POTS who become ill as children, never get to experience the camaraderie, music, relaxing fun atmosphere and all-round let-your-hair-down carefree banter and bliss of a night out with good friends.

So, to that end, I am eternally grateful I was able to experience social outings without limitations for many years before I became chronically ill.

But still. A night off for a night out would be really nice. I’d just like the opportunity to have a laugh and put the world to rights … instead of having more medication and putting myself to bed.

Anyone else with chronic illness also wishing Santa would grant them a night off for a night out?

Taken at a time when I was healthy, carefree – and ‘out’ out.

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By EmmaNovember 23, 2022Leave a comment

Author: Emma

http://chronicallycraptastic.com

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Hi there! I’m Emma. I’m the shit-head in the picture. A picture can say so much about a person, whilst also saying nothing. Well, nothing in this case other than: I clearly like lipstick and poo hats. So, now we’ve established how tasteful and stylish I am, allow me to tell you a bit about myself...

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