You know those annoying insects that never die? Like, no matter how many times you whack it, it just wobbles around with missing wings and limbs – refusing to die. Cockroaches I think. Anyways, between the chronic illness, infections and now Covid … I seem to have located my inner cockroach. I guess what I’m…
ME can mean – recurrent infections OR superhuman immune system. I’ve been both. The only perk to my ME so far over the years has been my superhuman ability to never (well, very rarely) get a cold or any other type of bug that’s been doing the rounds. (I mean, really, it’s the least my…
ME can mean – Difficulty speaking. I can normally find analogies to explain most of my symptoms of ME, but I really struggle to find one to explain what happened to me this morning: losing my ability to speak. It’s not the same as when you have a sore throat/virus and lose your voice. It…
It’s official: we have no healthy adults left in our household to run the show. Responsible? Probably. Healthy? Hell no.
Here, I discuss how life works for us now Pete has joined me aboard the Chronic Illness Express. I discuss things like childcare, employment, and really important issues like – who sticks the kettle on.
Pete, my partner, is a bit of a hero really, given how well he’s looked after me over the years when my ME and POTS was severe.
As such, the Karma Lords have decided to reward him with his very own first-class seat aboard the Chronic Illness Express.
Poor Pete. He’s in for a bumpy ride.
Here, I elaborate on his journey so far.
My Lovely Day Off Everyone needs a ‘me day’ from time to time. Yesterday was mine. I was right looking forward to it. It got off to a great start. For the first time in 6 weeks (!!), I finally felt well enough to go to the gym. It was SO nice to workout again…
I decided to write about someone else for a change!
This is the touching true story of my friend Juan’s triumph after a severe M.E relapse destroyed life as he knew it.
It’s full of the gritty realities of chronic illness – with a feel-good ending.
Being housebound for several years, missing from society, and now finally in a position to re-join the world – and potentially workforce, has made me even hastier than ever in my desire to jump back in … face first.
Here, I describe my latest mistake in a hasty attempt at putting the leftover pieces of my life back together.
I’m showered! Thank fuck for that. Thought I’d update on how I’m doing today – and the answer is: much better. Not completely back to my version of normal (my stomach still feels very delicate) but certainly heading in the right direction. I’ve actually achieved things today. I finally did the food shop (several days…
Really struggling – Day 5. I’m used to my symptoms fluctuating from one day to the next, and also within the same day. I’m used to my symptoms flaring up for several consecutive days after over-exerting myself. Sometimes it can last a week or two. But knowing this, doesn’t make it any easier. I’ve had…