Really struggling – Day 5. I’m used to my symptoms fluctuating from one day to the next, and also within the same day. I’m used to my symptoms flaring up for several consecutive days after over-exerting myself. Sometimes it can last a week or two. But knowing this, doesn’t make it any easier. I’ve had…
Happy birthday to me! And this is a VERY special one. For those who don’t know, I was a HUGE gym junkie before I got sick. I was in the best shape of my life – radiating health, strength, and wellness from every fibre of my being … and I LOVED it. Exercise was a…
The physical aspects of chronic illness can be brutal. But so can the cognitive aspects. Here, I discuss how brain fog causes my written communication to be so darn difficult.
From June 13th 2022 I’ve been needing to rest ever since doing the fun stuff on Saturday. But that’s not to say that fun hasn’t been had – it has. After all, it’s not every day that Batman rocks up in Grandma’s back garden! I’m hoping to be well enough for a zoo outing tomorrow.…
From June 11th 2022 Yay! I did the fun stuff today – with added spontaneous fun on top. Like a trip to this little place by the water. And a lunchtime glass of wine. Feel a bit crap now, but that’s often the price to pay for a fun outing. That, and needing to rest…
From June 10th 2022: And here’s the thing with chronic illness – you can’t just go for a trip away, with a worry-free mindset. Not even to spend a few days with family. Excited – definitely! But not worry free. Don’t get me wrong – it’s absolutely bloody fantastic to be here at my Mum’s.…
From June 4th 2022: It’s been a rough 11 days since wedding dress shopping day. Health has been up and down, but mostly down. However, while that’s been going on, we had some chrysalides that hatched into beautiful butterflies a few days ago – and today we set them free. It reminded me that although…
From May 25th 2022: Oooof, I feel rough today. As was totally predictable, my health is now paying the price for my big day out wedding dress shopping yesterday. I feel utterly hungover – except minus the alcohol, and utterly exhausted – except minus much physical activity. Just a foggy combination of nauseous, poisoned and…
From May 24th 2022: Today was such a momentous occasion for me (and my mum!) I’ve been waiting 4 years to go wedding dress shopping. Myself and Pete got engaged at a point when I couldn’t even get dressed – let alone get wed. So, it’s been a long time coming. It was such a…
From May 12th 2022: It’s been 4 years since Pete travelled to London with my trainers and stood up to tell our story at Millions Missing (while I was at home, pregnant, and too ill to go with him, my M.E having tipped over into ‘severe’ territory at that point). God, I love that man.…