From May 24th 2022: Today was such a momentous occasion for me (and my mum!) I’ve been waiting 4 years to go wedding dress shopping. Myself and Pete got engaged at a point when I couldn’t even get dressed – let alone get wed. So, it’s been a long time coming. It was such a…
From May 12th 2022: It’s been 4 years since Pete travelled to London with my trainers and stood up to tell our story at Millions Missing (while I was at home, pregnant, and too ill to go with him, my M.E having tipped over into ‘severe’ territory at that point). God, I love that man.…
From May 6th 2022 Is it nearly bedtime yet? I mean, my evening bedtime. Not my afternoon bedtime. (Anyone would think I’M the three-year-old in this anecdote). When I go for my afternoon bedtime, my son usually has some quiet time in his bedroom. He normally plays with his toys and watches his kindle. Not…
From April 19th 2022 And here’s today’s chronically craptastic awareness raising anecdote: I took my son somewhere new to play today. He loved it – lots of variety with toys, sensory and messy play. It was fantastic for him. And I loved it too because I got to chat with other mums. But it was…
April 11th 2022 Welcome! My name is Emma, and I have very recently made the decision to start blogging. And why have I decided to do this, you might ask? Well, for a start, I went missing from the world for 3 years – and no-one even looked for me! Rude. I wasn’t missing in…
Being chronically ill is hard enough, without being chronically crusty as well. Here, I discuss my personal hygiene hurdles from when I was severely unwell through to the present day.
M.E Myalgic Encephalomyelitis (M.E) is a complex multi-system disease with a wide range of disabling symptoms. ME is sometimes referred to as chronic fatigue syndrome/CFS. Personally, I can’t stand that name as it sounds a bit like ‘Very Tired Syndrome’ – which completely undermines the seriousness and complexities of the condition. The fatigue associated with…
POTS POTS stands for Postural Orthostatic Tachycardia Syndrome. This condition results from a dysfunction of the autonomic nervous system – also referred to as dysautonomia. The autonomic nervous system controls all the body’s involuntary systems, like heart rate, blood pressure, and digestion to name but a few – which can all be affected in POTS. …
This post concludes my three-part journey to a diagnosis of M.E and POTS.
My journey to diagnosis was all-encompassing, and my health deteriorated throughout. It was pretty crap – although I hope my way of sharing it with you is less crap.