From June 10th 2022: And here’s the thing with chronic illness – you can’t just go for a trip away, with a worry-free mindset. Not even to spend a few days with family. Excited – definitely! But not worry free. Don’t get me wrong – it’s absolutely bloody fantastic to be here at my Mum’s.…
DetailsFrom June 4th 2022: It’s been a rough 11 days since wedding dress shopping day. Health has been up and down, but mostly down. However, while that’s been going on, we had some chrysalides that hatched into beautiful butterflies a few days ago – and today we set them free. It reminded me that although…
DetailsFrom May 25th 2022: Oooof, I feel rough today. As was totally predictable, my health is now paying the price for my big day out wedding dress shopping yesterday. I feel utterly hungover – except minus the alcohol, and utterly exhausted – except minus much physical activity. Just a foggy combination of nauseous, poisoned and…
DetailsFrom May 24th 2022: Today was such a momentous occasion for me (and my mum!) I’ve been waiting 4 years to go wedding dress shopping. Myself and Pete got engaged at a point when I couldn’t even get dressed – let alone get wed. So, it’s been a long time coming. It was such a…
DetailsFrom May 12th 2022: It’s been 4 years since Pete travelled to London with my trainers and stood up to tell our story at Millions Missing (while I was at home, pregnant, and too ill to go with him, my M.E having tipped over into ‘severe’ territory at that point). God, I love that man.…
DetailsFrom May 6th 2022 Is it nearly bedtime yet? I mean, my evening bedtime. Not my afternoon bedtime. (Anyone would think I’M the three-year-old in this anecdote). When I go for my afternoon bedtime, my son usually has some quiet time in his bedroom. He normally plays with his toys and watches his kindle. Not…
DetailsFrom April 19th 2022 And here’s today’s chronically craptastic awareness raising anecdote: I took my son somewhere new to play today. He loved it – lots of variety with toys, sensory and messy play. It was fantastic for him. And I loved it too because I got to chat with other mums. But it was…
DetailsBeing chronically ill is hard enough, without being chronically crusty as well. Here, I discuss my personal hygiene hurdles from when I was severely unwell through to the present day.
DetailsM.E Myalgic Encephalomyelitis (M.E) is a complex multi-system disease with a wide range of disabling symptoms. ME is sometimes referred to as chronic fatigue syndrome/CFS. Personally, I can’t stand that name as it sounds a bit like ‘Very Tired Syndrome’ – which completely undermines the seriousness and complexities of the condition. The fatigue associated with…
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