Life with M.E and POTS: “It’s really hard but I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m struggling a bit – but I’m okay. I’m okay. I’m okay. I’m okay.” (Has a massive meltdown, shouts at the person closest to me when they probably don’t deserve it, cry…
DetailsPresents You would think after being chronically ill with M.E and POTS for nearly six years that I would learn to tailor my present wish list for the life I lead now … not the life I used to lead. … yet apparently, I’ve learned nothing. For my birthday back in August, I asked for…
DetailsWith the festive season fast approaching and people’s social calendars filling up – I just realised I can’t remember the last time I went ‘out’ out. What I do know is … it’s been many many years years.
This blog highlights the difficulties and loss that I, and much of the chronic illness community – face around the topic of enjoying a night out – whilst also showing gratitude for the good times when I was healthy.
DetailsYou know those annoying insects that never die? Like, no matter how many times you whack it, it just wobbles around with missing wings and limbs – refusing to die. Cockroaches I think. Anyways, between the chronic illness, infections and now Covid … I seem to have located my inner cockroach. I guess what I’m…
DetailsME can mean – recurrent infections OR superhuman immune system. I’ve been both. The only perk to my ME so far over the years has been my superhuman ability to never (well, very rarely) get a cold or any other type of bug that’s been doing the rounds. (I mean, really, it’s the least my…
DetailsME can mean – Difficulty speaking. I can normally find analogies to explain most of my symptoms of ME, but I really struggle to find one to explain what happened to me this morning: losing my ability to speak. It’s not the same as when you have a sore throat/virus and lose your voice. It…
DetailsIt’s official: we have no healthy adults left in our household to run the show. Responsible? Probably. Healthy? Hell no.
Here, I discuss how life works for us now Pete has joined me aboard the Chronic Illness Express. I discuss things like childcare, employment, and really important issues like – who sticks the kettle on.
DetailsPete, my partner, is a bit of a hero really, given how well he’s looked after me over the years when my ME and POTS was severe.
As such, the Karma Lords have decided to reward him with his very own first-class seat aboard the Chronic Illness Express.
Poor Pete. He’s in for a bumpy ride.
Here, I elaborate on his journey so far.
DetailsMy Lovely Day Off Everyone needs a ‘me day’ from time to time. Yesterday was mine. I was right looking forward to it. It got off to a great start. For the first time in 6 weeks (!!), I finally felt well enough to go to the gym. It was SO nice to workout again…
DetailsI decided to write about someone else for a change!
This is the touching true story of my friend Juan’s triumph after a severe M.E relapse destroyed life as he knew it.
It’s full of the gritty realities of chronic illness – with a feel-good ending.
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