This weekend marks my 6 year anniversary of getting sick and never recovering. It was Mother’s Day weekend in 2017 and my mum had travelled up to spend a long weekend with me. I lived in the city, so we had plenty of shopping, meals out, cocktails, and a trip to the theatre lined up.…
In the same way our bodies need food for survival, simple pleasures are essential for the wellbeing of our souls.
Fitbit – thumbs up or thumbs down? POTS is a form of dysautonomia (autonomic nervous system dysfunction) which affects many bodily systems, but especially heart rate. Simply standing up can send our heart rates into outer space. As such, many people with POTS wear devices that monitor their heart rate. My chosen device is a…
M.E can mean – regularly questioning whether I’ve been imagining the whole thing all along … for SIX YEARS.It’s got to be one of the biggest head fucks out there, and goes a little like this: I feel pretty good today, so I did (insert activity). (Wakes up next day): Uuuugh, I feel like death.…
I used to spend so much energy I didn’t have researching every little thing, in the hopes I would find a solution to my M.E – and ultimately, my suffering. It was fucking exhausting.
Read on to find out what I did about it.
Post-exertional recovery with M.E. It goes a little like this: Healthy person: ‘Hey friend, fancy meeting up today for a coffee and a catch up?’ Person with M.E: ‘Hey you, umm I would really love to … ‘ Healthy person: ‘I hear a ‘but’ coming … ‘ Person with M.E: ‘Yeah, but the thing is…
Stomach compression. It’s my new favourite thing.
Brain fog is a brutal symptom of ME and POTS, and one of the hardest things to explain. But I’m going to try anyway. Using a brick wall instead of fog.
POTS and ME can both mean Overactive Bladder (OAB) No-one under 75 really expects to have bladder issues. I mean yeah, those of us who have given birth might accidentally piss ourselves whilst jumping on the trampoline with our offspring, and wonder whether to stop jumping or just carry on – because, let’s face it…
Is your past self proud of you? How about your future self – do they get a high-five?