Low Day

When the morning alarm goes off and you cry. Not because you can’t do it all again, but because you fucking have to. And it’s hard. Some days it’s just too fucking hard.

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Why am I looking so smug?

Why am I looking so smug? … Well, I just removed my makeup in under 1 minute. That’s why! And no, this is NOT an advert. It’s just little old, energy-limited, chronically ill me, wanting to share this absolute godsend…

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More Firsts!

We did another ‘thing’ as a family recently: a road trip to Oxford for Pete’s cousin’s birthday bash. I haven’t been to a large social gathering since before getting sick over six years ago. It’s been a looong time. It…

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Road Trip

We’re just back from a trip away to see one of my oldest and bestest mates and her family. Sounds fun and pretty normal right? Wrong. I mean, yes it’s definitely fun – it was the most I’ve laughed in…

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Am I For Real?!

M.E can mean – regularly questioning whether I’ve been imagining the whole thing all along … for SIX YEARS.It’s got to be one of the biggest head fucks out there, and goes a little like this: I feel pretty good…

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Am I Okay?

Life with M.E and POTS: “It’s really hard but I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m struggling a bit – but I’m okay. I’m okay. I’m okay. I’m okay.” (Has a massive…

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Crashing Fears

Really struggling – Day 5. I’m used to my symptoms fluctuating from one day to the next, and also within the same day. I’m used to my symptoms flaring up for several consecutive days after over-exerting myself. Sometimes it can…

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Batman

From June 13th 2022 I’ve been needing to rest ever since doing the fun stuff on Saturday. But that’s not to say that fun hasn’t been had – it has. After all, it’s not every day that Batman rocks up…

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Fun Stuff

From June 11th 2022 Yay! I did the fun stuff today – with added spontaneous fun on top. Like a trip to this little place by the water. And a lunchtime glass of wine. Feel a bit crap now, but…

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Travel Worries

From June 10th 2022: And here’s the thing with chronic illness – you can’t just go for a trip away, with a worry-free mindset. Not even to spend a few days with family. Excited – definitely! But not worry free.…

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Butterfly Days

From June 4th 2022: It’s been a rough 11 days since wedding dress shopping day. Health has been up and down, but mostly down. However, while that’s been going on, we had some chrysalides that hatched into beautiful butterflies a…

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The Day After…

From May 25th 2022: Oooof, I feel rough today. As was totally predictable, my health is now paying the price for my big day out wedding dress shopping yesterday. I feel utterly hungover – except minus the alcohol, and utterly…

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Holy Mother of …

From May 6th 2022 Is it nearly bedtime yet? I mean, my evening bedtime. Not my afternoon bedtime. (Anyone would think I’M the three-year-old in this anecdote). When I go for my afternoon bedtime, my son usually has some quiet…

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Welcome!

April 11th 2022 Welcome! My name is Emma, and I have very recently made the decision to start blogging. And why have I decided to do this, you might ask? Well, for a start, I went missing from the world…

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