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Enjoy Simple Pleasures

In the same way our bodies need food for survival, simple pleasures are essential for the wellbeing of our souls.

Fitbit – Thumbs Up or Thumbs Down?

Fitbit – thumbs up or thumbs down? POTS is a form of dysautonomia (autonomic nervous system dysfunction) which affects many bodily systems, but especially heart rate. Simply standing up can send our heart rates into outer space. As such, many people with POTS wear devices that monitor their heart rate. My chosen device is a…

Am I For Real?!

M.E can mean – regularly questioning whether I’ve been imagining the whole thing all along … for SIX YEARS.It’s got to be one of the biggest head fucks out there, and goes a little like this: I feel pretty good today, so I did (insert activity). (Wakes up next day): Uuuugh, I feel like death.…

DIY Research: Knowing When To Stop

I used to spend so much energy I didn’t have researching every little thing, in the hopes I would find a solution to my M.E – and ultimately, my suffering. It was fucking exhausting.

Read on to find out what I did about it.

Post-Exertional Recovery: A Conversation Between Friends

Post-exertional recovery with M.E. It goes a little like this: Healthy person: ‘Hey friend, fancy meeting up today for a coffee and a catch up?’ Person with M.E: ‘Hey you, umm I would really love to … ‘ Healthy person: ‘I hear a ‘but’ coming … ‘ Person with M.E: ‘Yeah, but the thing is…

Stomach Compression

Stomach compression. It’s my new favourite thing.

Brain Fog and Brick Walls

Brain fog is a brutal symptom of ME and POTS, and one of the hardest things to explain. But I’m going to try anyway. Using a brick wall instead of fog.

POTS/ME and Overactive Bladder

POTS and ME can both mean Overactive Bladder (OAB) No-one under 75 really expects to have bladder issues. I mean yeah, those of us who have given birth might accidentally piss ourselves whilst jumping on the trampoline with our offspring, and wonder whether to stop jumping or just carry on – because, let’s face it…

Your Past, Present and Future Self

Is your past self proud of you? How about your future self – do they get a high-five?

What Would You Like For Christmas?

What Would You Like For Christmas? I can normally answer this question from Pete, my other half, pretty easily. There’s normally SOMETHING I’d like under the tree each year (shiny and pretty, ideally!) But this year is different. This year is the first time I can’t think of anything. It’s not that I’m void of…