M.E can mean – regularly questioning whether I’ve been imagining the whole thing all along … for SIX YEARS.It’s got to be one of the biggest head fucks out there, and goes a little like this: I feel pretty good today, so I did (insert activity). (Wakes up next day): Uuuugh, I feel like death.…
DetailsI used to spend so much energy I didn’t have researching every little thing, in the hopes I would find a solution to my M.E – and ultimately, my suffering. It was fucking exhausting.
Read on to find out what I did about it.
DetailsPost-exertional recovery with M.E. It goes a little like this: Healthy person: ‘Hey friend, fancy meeting up today for a coffee and a catch up?’ Person with M.E: ‘Hey you, umm I would really love to … ‘ Healthy person: ‘I hear a ‘but’ coming … ‘ Person with M.E: ‘Yeah, but the thing is…
DetailsBrain fog is a brutal symptom of ME and POTS, and one of the hardest things to explain. But I’m going to try anyway. Using a brick wall instead of fog.
DetailsPOTS and ME can both mean Overactive Bladder (OAB) No-one under 75 really expects to have bladder issues. I mean yeah, those of us who have given birth might accidentally piss ourselves whilst jumping on the trampoline with our offspring, and wonder whether to stop jumping or just carry on – because, let’s face it…
DetailsIs your past self proud of you? How about your future self – do they get a high-five?
DetailsWhat Would You Like For Christmas? I can normally answer this question from Pete, my other half, pretty easily. There’s normally SOMETHING I’d like under the tree each year (shiny and pretty, ideally!) But this year is different. This year is the first time I can’t think of anything. It’s not that I’m void of…
DetailsI took my son to see Sleeping Beauty in panto yesterday (as you can see, we were pretty excited!). The performance was fantastic. Afterwards, I got thinking about the everyday pantomime that is parenting with ME and POTS. And here is what I realised: – Although I am woken by my own handsome prince every…
DetailsLife with M.E and POTS: “It’s really hard but I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m struggling a bit – but I’m okay. I’m okay. I’m okay. I’m okay.” (Has a massive meltdown, shouts at the person closest to me when they probably don’t deserve it, cry…
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