Blog

Brain Fog and Brick Walls

Brain fog is a brutal symptom of ME and POTS, and one of the hardest things to explain. But I’m going to try anyway. Using a brick wall instead of fog.

POTS/ME and Overactive Bladder

POTS and ME can both mean Overactive Bladder (OAB) No-one under 75 really expects to have bladder issues. I mean yeah, those of us who have given birth might accidentally piss ourselves whilst jumping on the trampoline with our offspring, and wonder whether to stop jumping or just carry on – because, let’s face it…

Your Past, Present and Future Self

Is your past self proud of you? How about your future self – do they get a high-five?

What Would You Like For Christmas?

What Would You Like For Christmas? I can normally answer this question from Pete, my other half, pretty easily. There’s normally SOMETHING I’d like under the tree each year (shiny and pretty, ideally!) But this year is different. This year is the first time I can’t think of anything. It’s not that I’m void of…

ME, Parenting and Pantomime: A Christmas Comparison

I took my son to see Sleeping Beauty in panto yesterday (as you can see, we were pretty excited!). The performance was fantastic. Afterwards, I got thinking about the everyday pantomime that is parenting with ME and POTS. And here is what I realised: – Although I am woken by my own handsome prince every…

Am I Okay?

Life with M.E and POTS: “It’s really hard but I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m okay. I’m struggling a bit – but I’m okay. I’m okay. I’m okay. I’m okay.” (Has a massive meltdown, shouts at the person closest to me when they probably don’t deserve it, cry…

Birthday present

Presents You would think after being chronically ill with M.E and POTS for nearly six years that I would learn to tailor my present wish list for the life I lead now … not the life I used to lead. … yet apparently, I’ve learned nothing. For my birthday back in August, I asked for…

Going ‘Out’ Out

With the festive season fast approaching and people’s social calendars filling up – I just realised I can’t remember the last time I went ‘out’ out. What I do know is … it’s been many many years years.

This blog highlights the difficulties and loss that I, and much of the chronic illness community – face around the topic of enjoying a night out – whilst also showing gratitude for the good times when I was healthy.

Locating My Inner Cockroach

You know those annoying insects that never die? Like, no matter how many times you whack it, it just wobbles around with missing wings and limbs – refusing to die. Cockroaches I think. Anyways, between the chronic illness, infections and now Covid … I seem to have located my inner cockroach. I guess what I’m…

ME Can Mean – Recurrent Infections OR Superhuman Immune System

ME can mean – recurrent infections OR superhuman immune system. I’ve been both. The only perk to my ME so far over the years has been my superhuman ability to never (well, very rarely) get a cold or any other type of bug that’s been doing the rounds. (I mean, really, it’s the least my…