M.E Can Mean … Blaming Myself
For me, one of the hardest aspects of becoming unwell with ME is not knowing whether I’m wholly to blame for the situation I’m in.
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Severe M.E and Mobile Hairdressers: Fuck Yes or Fuck No?
I was at the hairdressers the other week, having my usual colour and trim. As I sat there, watching my hair reclaim its *cough* ‘natural’ colour and ridding itself of split ends, my mind wandered back to the years when my M.E was Severe and there wasn’t a cats chance in hell of me ever making it to the hairdressers.
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Severe M.E, TV and a Side Order of Jealousy: A Memory:
Severe M.E, TV and a Side Order of Jealousy: A Memory: Back when I was housebound due to Severe M.E and POTS, I could only handle watching TV for 10 mins a day. Any longer than this would be sensory overload, which would exacerbate my symptoms, and leave me feeling more ill than I did…
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Award-Winning …. Disability Benefits.
Disability benefits. Let me just go and prepare my acceptance speech …
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Six Years of Sickness
This weekend marks my 6 year anniversary of getting sick and never recovering. It was Mother’s Day weekend in 2017 and my mum had travelled up to spend a long weekend with me. I lived in the city, so we had plenty of shopping, meals out, cocktails, and a trip to the theatre lined up.…
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Enjoy Simple Pleasures
In the same way our bodies need food for survival, simple pleasures are essential for the wellbeing of our souls.
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Fitbit – Thumbs Up or Thumbs Down?
Fitbit – thumbs up or thumbs down? POTS is a form of dysautonomia (autonomic nervous system dysfunction) which affects many bodily systems, but especially heart rate. Simply standing up can send our heart rates into outer space. As such, many people with POTS wear devices that monitor their heart rate. My chosen device is a…
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Am I For Real?!
M.E can mean – regularly questioning whether I’ve been imagining the whole thing all along … for SIX YEARS.It’s got to be one of the biggest head fucks out there, and goes a little like this: I feel pretty good today, so I did (insert activity). (Wakes up next day): Uuuugh, I feel like death.…
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DIY Research: Knowing When To Stop
I used to spend so much energy I didn’t have researching every little thing, in the hopes I would find a solution to my M.E – and ultimately, my suffering. It was fucking exhausting.
Read on to find out what I did about it.
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Post-Exertional Recovery: A Conversation Between Friends
Post-exertional recovery with M.E. It goes a little like this: Healthy person: ‘Hey friend, fancy meeting up today for a coffee and a catch up?’ Person with M.E: ‘Hey you, umm I would really love to … ‘ Healthy person: ‘I hear a ‘but’ coming … ‘ Person with M.E: ‘Yeah, but the thing is…
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