Blog

PEM: The Aftermath

I rather stupidly thought I’d gotten away with it. ‘It’ being our trip away to see friends. Tut tut. Silly me.

Road Trip

We’re just back from a trip away to see one of my oldest and bestest mates and her family. Sounds fun and pretty normal right? Wrong.

I mean, yes it’s definitely fun – it was the most I’ve laughed in ages. But no, this is not normal for us.

Chronic Illness, Identity Loss … and Lizards

Chronic illness can be a massive threat to our identity. So, what happens when everything that makes you ‘you’ goes missing?

… You channel your inner lizard.

Chronic Illness and Happiness

Chronic illness and happiness. Here I discuss how Severe ME and POTS has influenced the joy in my life now my health has improved.

M.E ‘Warriors’

M.E ‘warriors’. The term grates on me on a visceral level, and makes me wanna scream until I puke. But, why is that?

All Hail the Plastic Plate!

Plastic plates. Who would have thought they could be a useful piece of equipment for anything other than camping and small children? Certainly not me. Well, not me before M.E.

… Nowadays however, I think they’re bloomin’ fantastic!

Corpse or POTS?

If you went walking up on the Yorkshire moors today, you might have stumbled across a body. Twice. A motionless, random body … just laying there like a corpse.

The Curse of the Blue Badge (Disabled Parking Permits) …

Unless you blatantly ‘look’ disabled, then Disabled Parking Permits are both a blessing and a curse.

The blessings are obvious. So here, I discuss the curses.

Lego Wheelchairs: A Proud Mummy Moment

My son was looking at pictures of Lego the other day, when suddenly his face lit up, his eyes went all wide, and he became very excited.

Read on to find out why. (Hint … it has something to do with wheelchairs.)

Chronic Illness and Social Media: A Love Story (… well, sort of)

Social Media: people often talk about the negatives … but what about the positives? Imagine the ‘olden days,’ before the advent of social media. A time when chronically ill and/or disabled people had to rely solely on nearby friends and family for love and support. A time when, even if a person was lucky enough…