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My life with POTS and M.E
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Apr262023

The Curse of the Blue Badge (Disabled Parking Permits) …

BlogBy EmmaApril 26, 2023Leave a comment

Unless you blatantly ‘look’ disabled, then Disabled Parking Permits are both a blessing and a curse.

The blessings are obvious. So here, I discuss the curses.

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Apr232023

Lego Wheelchairs: A Proud Mummy Moment

BlogBy EmmaApril 23, 2023Leave a comment

My son was looking at pictures of Lego the other day, when suddenly his face lit up, his eyes went all wide, and he became very excited.

Read on to find out why. (Hint … it has something to do with wheelchairs.)

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Apr192023

Chronic Illness and Social Media: A Love Story (… well, sort of)

BlogBy EmmaApril 19, 2023Leave a comment

Social Media: people often talk about the negatives … but what about the positives? Imagine the ‘olden days,’ before the advent of social media. A time when chronically ill and/or disabled people had to rely solely on nearby friends and family for love and support. A time when, even if a person was lucky enough…

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Apr122023

M.E Can Mean … Blaming Myself

BlogBy EmmaApril 12, 20232 Comments

For me, one of the hardest aspects of becoming unwell with ME is not knowing whether I’m wholly to blame for the situation I’m in.

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Apr62023

Severe M.E and Mobile Hairdressers: Fuck Yes or Fuck No?

Personal EssaysBy EmmaApril 6, 2023Leave a comment

I was at the hairdressers the other week, having my usual colour and trim. As I sat there, watching my hair reclaim its *cough* ‘natural’ colour and ridding itself of split ends, my mind wandered back to the years when my M.E was Severe and there wasn’t a cats chance in hell of me ever making it to the hairdressers.

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Apr22023

Severe M.E, TV and a Side Order of Jealousy: A Memory:

BlogBy EmmaApril 2, 2023Leave a comment

Severe M.E, TV and a Side Order of Jealousy: A Memory: Back when I was housebound due to Severe M.E and POTS, I could only handle watching TV for 10 mins a day. Any longer than this would be sensory overload, which would exacerbate my symptoms, and leave me feeling more ill than I did…

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Mar292023
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Award-Winning …. Disability Benefits.

BlogBy EmmaMarch 29, 20233 Comments

Disability benefits. Let me just go and prepare my acceptance speech …

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Mar272023

Six Years of Sickness

BlogBy EmmaMarch 27, 2023Leave a comment

This weekend marks my 6 year anniversary of getting sick and never recovering. It was Mother’s Day weekend in 2017 and my mum had travelled up to spend a long weekend with me. I lived in the city, so we had plenty of shopping, meals out, cocktails, and a trip to the theatre lined up.…

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Mar222023

Enjoy Simple Pleasures

BlogBy EmmaMarch 22, 2023Leave a comment

In the same way our bodies need food for survival, simple pleasures are essential for the wellbeing of our souls.

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Mar202023

Fitbit – Thumbs Up or Thumbs Down?

BlogBy EmmaMarch 20, 20232 Comments

Fitbit – thumbs up or thumbs down? POTS is a form of dysautonomia (autonomic nervous system dysfunction) which affects many bodily systems, but especially heart rate. Simply standing up can send our heart rates into outer space. As such, many people with POTS wear devices that monitor their heart rate. My chosen device is a…

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Hi there! I’m Emma. I’m the shit-head in the picture. A picture can say so much about a person, whilst also saying nothing. Well, nothing in this case other than: I clearly like lipstick and poo hats. So, now we’ve established how tasteful and stylish I am, allow me to tell you a bit about myself...

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