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My life with POTS and M.E
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Nov22023

It’s That Time of Year Again

BlogBy EmmaNovember 2, 20232 Comments

It’s that time of year again. And I don’t mean Chris Rea starting his drive home for Christmas at the stroke of midnight on Halloween, Ho-Ho-Ho.

No, I mean every October my ME gets a little worse and I start wracking my brain to figure out why.

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Oct252023

Conversations with POTS: Standing up for Not Standing Up

BlogBy EmmaOctober 25, 20233 Comments

“F**k, I don’t feel so good. I really need to sit or lie down. Like, RIGHT NOW.

This is what goes through my head every time I find myself in a situation where I need to have a meaningful conversation whilst standing up.

But … why is that?

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Oct232023

I fucked up. And that’s okay.

BlogBy EmmaOctober 23, 20233 Comments

“You’re going to be okay. You’re going to be okay. You’re going to be okay.”

“… But, what if I’m not? What then?”

Those are the thoughts racing through my head, as I fight back the tears and terror of never knowing if today will be the day that I relapse.

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Oct222023

Couch to 5K, X-Ray … or ummm … Back to the Couch?

BlogBy EmmaOctober 22, 20232 Comments

A few weeks ago, I downloaded the NHS Couch to 5K app. I had this ‘great’ idea that I would ease myself into running – and I was going to fucking ACE it! Unsurprisingly, it didn’t exactly go to plan.

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Oct152023

Sometimes … it’s just nice.

BlogBy EmmaOctober 15, 2023Leave a comment

Sometimes it’s just: Nice to wear makeup and straighten my hair.Nice to be out in the fresh air, doing ‘normal’ things.Nice to go on a group play date, and the other mums have zero clue I’ve been in bed crashing for most of the last 3 days.Nice to feel vaguely human again after said crash.Nice…

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Oct112023

Survivor’s Guilt

BlogBy EmmaOctober 11, 2023Leave a comment

A few years ago, when my ME/POTS was Severe, I could only dream of doing the things I can now. Still, when it comes to sharing my joys and triumphs on social media … I always feel a bit guilty.

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Oct22023

Adrenaline, False Sense of Health, and Superhuman Willpower

BlogBy EmmaOctober 2, 2023Leave a comment

I REALLY wanted to take O to the Junior Park Run yesterday. My mind felt totally ready. My body felt a little tired – but – I could feel the dregs of Saturday’s adrenaline still clinging to my body like a limpet, egging me on to do it.

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Sep222023

Chronic illness changes a person. But who?

BlogBy EmmaSeptember 22, 2023Leave a comment

ME/POTS has definitely altered my priorities in life and imposed limitations on my capabilities. However, I am still the same person I always was in terms of personality and lust for life.

Still, something (well, someone) has changed:

… Pete.

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Sep122023

Burden or Team Mate?

BlogBy EmmaSeptember 12, 20233 Comments

“When you first got sick, did you worry I would leave you?”

Pete asked me this recently, when he was in bed with a virus and I was looking after him.

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Sep62023

My Baby Starts School Today. He’s ready … but am I?

BlogBy EmmaSeptember 6, 2023Leave a comment

O can’t possibly be starting school. We need more time, because, well … I’m not done making up for the time we lost.

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Hi there! I’m Emma. I’m the shit-head in the picture. A picture can say so much about a person, whilst also saying nothing. Well, nothing in this case other than: I clearly like lipstick and poo hats. So, now we’ve established how tasteful and stylish I am, allow me to tell you a bit about myself...

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Latest Posts

  • When a hen ‘do’ turned into a hen ‘don’t’July 23, 2025
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  • Dusting off the bike!June 27, 2025
  • Coming Home to PeteMay 27, 2025
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