Blog

Chronic Illness and New Projects:

Taking on new projects or responsibilities can be exciting. But if you suffer with M.E and/or POTS, then be prepared for a little Mind vs Body backlash.

Drink the ‘Good’ Wine

When I was healthy, I had one or two bottles of ‘good’ wine put aside – for years on end – ready for an occasion where I felt ‘deserving of it or like I’d ‘earned’ it. Not anymore. Nowadays, I drink the good wine. Here, I talk about why.

More Firsts!

We did another ‘thing’ as a family recently: a road trip to Oxford for Pete’s cousin’s birthday bash.

I haven’t been to a large social gathering since before getting sick over six years ago. It’s been a looong time. It was FANTASTIC – albeit different to when I was well.

The Creases of Chronic Illness:

Here I discuss my son’s reaction to seeing an ironing board for the first time, and why it’s taken 4 years for the concept of ironing to (finally!) enter his radar.

Myself vs. Reality

M.E and self-doubt. Why, after all these years do I STILL question my reality?

Overheating: A Quick Fix

People with ME and/or POTS have body’s that struggle with temperature regulation – and I am no exception.

IV hydrating fluids? Hit me up!!

The last time I had an anaesthetic, it didn’t end well for me. So this time, I wanted it to be different.

The ‘Procedure’ Went Well … (albeit my face forgot to tell the camera that!)

Monday’s procedure of stretching my wee shoot to help alleviate symptoms of Overactive Bladder (OAB) went well. The technical name for this procedure is ‘Urethral Dilatation’. No slicing, dicing, or removal of anything involved. Just go up my pee shoot, stretch it like an elastic band and then let it ping back into shape. Bish…

Surgery Day

I’m having surgery today. Yet, I’m not worried about the procedure itself; I’m worried about the anaesthetic.

Here, I explain why …

PEM: The Aftermath

I rather stupidly thought I’d gotten away with it. ‘It’ being our trip away to see friends. Tut tut. Silly me.