‘I’m going on HRT so I can find out if the problem is M.E, myself … or YOU.’
This is what I told Pete recently, after he enquired about my recent doctor’s appointment to discuss if I might be perimenopausal and if it’s worth trying HRT.
Except, with chronic illness thrown into the mix … it gets a bit messy.
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Hello my lovelies and welcome new subscribers!! I realised that I haven’t introduced myself properly in a very long time – and although you can read about me in the aptly named ‘About Me’ section of the website, I thought it might still be nice to give a little wave and tell you a bit more about myself here too.
Newly diagnosed with ME? I covered a lot of the main ‘must know’ points in my last post – however, as I lay in bed on Saturday afternoon, feeling all the ‘feels’ after letting a friend down because I wasn’t well enough to meet – I realised a few points I hadn’t mentioned.
Newly diagnosed with ME?
Wish you had a clue of what to expect going forward?
I was in that boat too once. It’s crap and I’d really like to help.
Here, I share all the things I’ve learned and wish I’d known from the start …
Initial DNA results from the world’s largest DecodeME study are in – and the results are rather marvellous indeed! People with ME have every reason to feel hopeful for a brighter future. So … why do I feel so ‘meh’ about it?
“It’s really good after all these years and everything we’ve been through, that we can still vaguely enjoy each other’s company.” ~ Pete.
Now, these are definitely not the most romantic utterings I’ve ever heard. However, with ME/POTS hanging around like a bad smell all the time, I’ve come to realise that ‘vaguely enjoying each other’s company’ is actually something to be celebrated. Read on to find out why.
I did something I haven’t done in about 9 years recently – and I was SO excited!
… until my POTS came along and dropped a steaming turd all over it, that is.
We made it to one year as Mr & Mrs! Whoop whoop! Here, I’ve created a short video and written something a little different to my norm, in the hopes of capturing the sunshine, shit-storms, and rainbows along the road to reaching this milestone. Oh, and if you like the Beatles, give it a read/watch, if only for that reason.
Bike riding, along with a million other things, kinda went for a swim in the sewer of life when I got sick over 8 years ago. Little did I know then, that 8 years later, I’d be plunging my bike back out.
I remember the very first time I came home to Pete. We’d been living together for three years by that point.