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My life with POTS and M.E
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Monthly Archives: August 2023

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DNA delivered in 2mls of spit!

BlogBy EmmaAugust 23, 2023Leave a comment

I’ve done it! I’ve contributed to the world’s largest genetic study of M.E.

Here, I summarise the bumpy road for our community leading up to this M.E milestone.

M.E, Motherhood, and Missing Out on ‘Firsts.’

BlogBy EmmaAugust 16, 2023Leave a comment

Our children’s ‘firsts’ are important milestones in their rapid development – which is why it’s so heartbreaking when M.E stops us from witnessing them. Here, I talk about the recent ‘first’ I missed out on.

M.E and Birthday Thievery

BlogBy EmmaAugust 9, 2023Leave a comment

It’s my birthday – hooray! Except, thanks to three years of Severe ME / POTS, I’m a little unsure of my age.

Disability Benefits – End of an Era:

BlogBy EmmaAugust 2, 2023Leave a comment

PIP (disability benefits) are a financial lifeline to many people with ME/POTS. So what happens when you no longer qualify, yet you’re not well enough to work?

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