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My life with POTS and M.E
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Monthly Archives: April 2023

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Corpse or POTS?

BlogBy EmmaApril 30, 2023Leave a comment

If you went walking up on the Yorkshire moors today, you might have stumbled across a body. Twice. A motionless, random body … just laying there like a corpse.

The Curse of the Blue Badge (Disabled Parking Permits) …

BlogBy EmmaApril 26, 2023Leave a comment

Unless you blatantly ‘look’ disabled, then Disabled Parking Permits are both a blessing and a curse.

The blessings are obvious. So here, I discuss the curses.

Lego Wheelchairs: A Proud Mummy Moment

BlogBy EmmaApril 23, 2023Leave a comment

My son was looking at pictures of Lego the other day, when suddenly his face lit up, his eyes went all wide, and he became very excited.

Read on to find out why. (Hint … it has something to do with wheelchairs.)

Chronic Illness and Social Media: A Love Story (… well, sort of)

BlogBy EmmaApril 19, 2023Leave a comment

Social Media: people often talk about the negatives … but what about the positives? Imagine the ‘olden days,’ before the advent of social media. A time when chronically ill and/or disabled people had to rely solely on nearby friends and family for love and support. A time when, even if a person was lucky enough…

M.E Can Mean … Blaming Myself

BlogBy EmmaApril 12, 20232 Comments

For me, one of the hardest aspects of becoming unwell with ME is not knowing whether I’m wholly to blame for the situation I’m in.

Severe M.E and Mobile Hairdressers: Fuck Yes or Fuck No?

Personal EssaysBy EmmaApril 6, 2023Leave a comment

I was at the hairdressers the other week, having my usual colour and trim. As I sat there, watching my hair reclaim its *cough* ‘natural’ colour and ridding itself of split ends, my mind wandered back to the years when my M.E was Severe and there wasn’t a cats chance in hell of me ever making it to the hairdressers.

Severe M.E, TV and a Side Order of Jealousy: A Memory:

BlogBy EmmaApril 2, 2023Leave a comment

Severe M.E, TV and a Side Order of Jealousy: A Memory: Back when I was housebound due to Severe M.E and POTS, I could only handle watching TV for 10 mins a day. Any longer than this would be sensory overload, which would exacerbate my symptoms, and leave me feeling more ill than I did…

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