APPARENTLY, I’m ending 2023 on a high.
… A sugar high.
Still, aside from stuffing my face with enough chocolate, mince pies, and cake to induce a diabetic coma – I think I can confidently say, this year has been a good one for me health-wise.
If M.E has taught me anything, it’s that time is not a given. That, and fear of relapse is a real head-fuck.
Most people with M.E and/or POTS have SOME sort of aid they simply cannot live without. Mine is my earplugs.
So, I’m in this not-so-fun predicament today where I kinda need to choose between my partner (Pete) or my five-year-old son (O). Hmm …
Yesterday was a VERY rare day for me. I was almost entirely symptom free. And now, I’m just flabbergasted.
Wheelchairs are great. We all know that. Still, as with most things in life … it’s not all spokey dokeys and rainbows. So, here are six crappy things I never knew until I found myself in a wheelchair for three years.
“All you ever talk about is your health.”
Have any of you had these hurtful words uttered to you? I have … and I’m guessing many of you have too.
Once upon a time, back when my ME/POTS was severe, I used an electric wheelchair on the rare occasions I could leave the house.
This was a truly difficult, no scrap that – I mean fucking awful – decision to make.
Here, I explain why.
It’s that time of year again. And I don’t mean Chris Rea starting his drive home for Christmas at the stroke of midnight on Halloween, Ho-Ho-Ho.
No, I mean every October my ME gets a little worse and I start wracking my brain to figure out why.
“F**k, I don’t feel so good. I really need to sit or lie down. Like, RIGHT NOW.
This is what goes through my head every time I find myself in a situation where I need to have a meaningful conversation whilst standing up.
But … why is that?