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My life with POTS and M.E
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Feb222025

F*ck Me, I did it!

BlogBy EmmaFebruary 22, 2025Leave a comment

Fuck me, I did it! For the first time in 8 years – I finally went ‘out out.’

… And it was perfect!

Though, the anxiety and turmoil I experienced in the lead up to this night out – was most definitely – NOT perfect. Read on for both the turmoil and the terrific!

Details
Feb52025

ME/POTS and going ‘out out’…

BlogBy EmmaFebruary 5, 2025Leave a comment

… ‘Out out’ of my mind with worry that is.
It’s a fellow mummy friend’s birthday in a few days, and she’d like to let her hair down. And the best place to do this where we live is – a one-hour train ride away – in the city. What could possibly go wrong? Well, umm, with ME/POTS … everything.

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Jan292025

Projecting My Weird Beliefs

BlogBy EmmaJanuary 29, 2025Leave a comment

“… Don’t project your weird beliefs on others!”

This demand for me to silence myself formed part of a comment on Facebook recently. As such, I decided to have a little fun with it!

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Jan152025

New Year, Trashing of Old Years … and Sheep’s Bum Holes

BlogBy EmmaJanuary 15, 2025Leave a comment

So there I was, merrily scrolling through Facebook on NYE, when I noticed something. It’s a recurring theme that I see every year, as people are wrapping up the old year and moving forward to the next. Read on to find out what it is and why I disagree with it.

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Jan112025

Home schooling, Maths, and ME … A Crappy Equation

BlogBy EmmaJanuary 11, 2025Leave a comment

Just melt already, I can’t handle this any longer!!

… The home schooling, that is. Not the snow and ice.

It’s no secret that England really doesn’t know how to ‘winter’. First sign of snow and the country grinds to a shivering halt. And in the case of last week, this includes the school of a student we currently care for.

Details
Nov142024

Chronic Illness and Carbonara

BlogBy EmmaNovember 14, 2024Leave a comment

I’ve been struggling lately.

I just feel so overwhelmed with trying to navigate life and the ‘mental load’, when my physical health has been trapped in the u-bend that separates wellness and umm … shit.

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Oct272024

Now you see ME … Now you don’t

BlogBy EmmaOctober 27, 2024Leave a comment

No-one knows gratitude quite like a person who has been lucky enough to claw their way back up to Mild ME after years of being housebound and/or bedridden with Severe ME.

But here’s the thing …

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Sep42024

Pretend Going Out

BlogBy EmmaSeptember 4, 2024Leave a comment

What do you do when you need some ‘me time’ away from your family, but your ME won’t let you leave the house? Well you, umm … pretend to go out.

Details
Aug212024

What do Marriage and Chronic Illness have in common?

BlogBy EmmaAugust 21, 2024Leave a comment

Q: What do Marriage and Chronic Illness have in common?

A: Lifelong commitment.

One, I entered into happily – whereas the other, can fuck right off.

Details
Jun142024

What I didn’t say

BlogBy EmmaJune 14, 2024Leave a comment

Ever look back on a conversation and wonder why you did or didn’t say a particular thing? Yeah, me too. Here, I unload my thoughts on why I kept my mouth zipped recently.

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Hi there! I’m Emma. I’m the shit-head in the picture. A picture can say so much about a person, whilst also saying nothing. Well, nothing in this case other than: I clearly like lipstick and poo hats. So, now we’ve established how tasteful and stylish I am, allow me to tell you a bit about myself...

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Latest Posts

  • First Wedding AnniversaryJuly 8, 2025
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  • Coming Home to PeteMay 27, 2025
  • Nocturnal hypervigilance and ‘tremendous tremors’May 14, 2025
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