Blog

Low Day

When the morning alarm goes off and you cry.

Not because you can’t do it all again, but because you fucking have to. And it’s hard. Some days it’s just too fucking hard.

Parenting from bed. With help from … Alexa?!

I’m crashing today, and I’ve reached the point where I simply have to be in bed. But … how can I parent from bed?!

Why am I looking so smug?

Why am I looking so smug?

… Well, I just removed my makeup in under 1 minute. That’s why!

And no, this is NOT an advert. It’s just little old, energy-limited, chronically ill me, wanting to share this absolute godsend that’s recently come into my life, in the hopes of helping other people like me … make life just a teensey bit easier.

Ever wondered what the best weapon would be for beating yourself round the head?

Ever wondered what the best weapon would be for beating yourself round the head?

… Yeah, me neither.

Yet recently, I found out.

My face and half of Pete’s head made a magazine front cover!

Now THAT was a pleasant surprise. Not that the arrival of the latest edition of ME Essentials magazine isn’t a pleasant surprise in itself; of course it is. It’s just EXTRA pleasant when I realise I’m in it!

… Umm … or am I?

Stop, Notice, Love.

I’ve been a very busy girl of late. Busier than someone with ME/POTS should be. My body asked me to stop this week. So, I did – and this is when I started to notice stuff.

Old Dog, New Trick

Last year, O asked me to knit him a ‘rainbow’ blanket – and I was happy to oblige! Now, 8 months later – this old dog is trying a new trick with said banket. And breaking my back in the process.

Showering: self-care or self-sabotage?

Sometimes, I can’t quite tell the difference between ‘lazy Sunday morning’ relaxed, and ‘your body doesn’t feel like doing much because you’re chronically ill and fresh out of spoons’ relaxed. This is when I make unwise choices about simple things … like showering.

Getting Wed … In Bed?!

Planning a wedding around chronic illness, as it pans out … is a logistical nightmare. Here, I highlight a few considerations we’ve had to navigate on the road to becoming Pete’s future wife.

Guess my memory has officially left the building:

The other day, I was waiting with the other parents at school pick up. I saw my friend and gave her a big hug and said, “Happy new year! Feels like I haven’t seen you in ages!” To which she replied, “we saw each other last week. We had a play date, remember?” … Oops.…