The Curse of the Blue Badge (Disabled Parking Permits) …
Unless you blatantly ‘look’ disabled, then Disabled Parking Permits are both a blessing and a curse.
The blessings are obvious. So here, I discuss the curses.
Lego Wheelchairs: A Proud Mummy Moment
My son was looking at pictures of Lego the other day, when suddenly his face lit up, his eyes went all wide, and he became very excited.
Read on to find out why. (Hint … it has something to do with wheelchairs.)
Chronic Illness and Social Media: A Love Story (… well, sort of)
Social Media: people often talk about the negatives … but what about the positives? Imagine the ‘olden days,’ before the advent of social media. A time when chronically ill and/or disabled people had to rely solely on nearby friends and family for love and support. A time when, even if a person was lucky enough…
M.E Can Mean … Blaming Myself
For me, one of the hardest aspects of becoming unwell with ME is not knowing whether I’m wholly to blame for the situation I’m in.
Severe M.E and Mobile Hairdressers: Fuck Yes or Fuck No?
I was at the hairdressers the other week, having my usual colour and trim. As I sat there, watching my hair reclaim its *cough* ‘natural’ colour and ridding itself of split ends, my mind wandered back to the years when my M.E was Severe and there wasn’t a cats chance in hell of me ever making it to the hairdressers.
Severe M.E, TV and a Side Order of Jealousy: A Memory:
Severe M.E, TV and a Side Order of Jealousy: A Memory: Back when I was housebound due to Severe M.E and POTS, I could only handle watching TV for 10 mins a day. Any longer than this would be sensory overload, which would exacerbate my symptoms, and leave me feeling more ill than I did…
Award-Winning …. Disability Benefits.
Disability benefits. Let me just go and prepare my acceptance speech …
Six Years of Sickness
This weekend marks my 6 year anniversary of getting sick and never recovering. It was Mother’s Day weekend in 2017 and my mum had travelled up to spend a long weekend with me. I lived in the city, so we had plenty of shopping, meals out, cocktails, and a trip to the theatre lined up.…
Enjoy Simple Pleasures
In the same way our bodies need food for survival, simple pleasures are essential for the wellbeing of our souls.
Fitbit – Thumbs Up or Thumbs Down?
Fitbit – thumbs up or thumbs down? POTS is a form of dysautonomia (autonomic nervous system dysfunction) which affects many bodily systems, but especially heart rate. Simply standing up can send our heart rates into outer space. As such, many people with POTS wear devices that monitor their heart rate. My chosen device is a…