Blog

Coming Home to Pete

I remember the very first time I came home to Pete. We’d been living together for three years by that point.

Nocturnal hypervigilance and ‘tremendous tremors’

I found myself doing something kinda ridiculous on a long weekend away last year.

There I was, getting out of our mega-comfy hotel bed in the middle of the night to scrabble around the room in the dark, frantically looking for a spare blanket like a drug addict searches for their next fix.

Except, the kind of crack I was desperate for wasn’t extra warmth … it was a crack at sleeping on the mega hard floor.

So, ummm … why would I do that?!

Read on to find out!

Who’s THAT girl?!

Who’s THAT girl?

Okay, so clearly, she’s me. But I just don’t get it; how could I possibly have been her only a few weeks ago?

She looks so … healthy.

Easter Hols vs ME Demons

Here, I demonstrate how not to survive the Easter school holidays with ME/POTS.

The Day I Stopped Living

I remember vividly the day I stopped living.

It was Mother’s Day, 2017.

ME, Myself and … Pete Pissing Me Off

“You’ve been doing too much.”

Now, is it just me – or does anyone else with ME fucking hate it when someone says this to them?

Motherhood and ME: A Beautiful Trauma

A cute memory of O as a baby from six years ago appeared in my Facebook feed recently. This reminder brought to mind a whole bunch of other memories: ones of parenting with Severe ME that will stay with me for life, and go way beyond a cute baby pic …

Hear me roar!

Woohoo! Hear me roar!!

Yes folks, brace yourself for something truly outstanding. Are you sitting down? Are you ready for my massive revelation? Okay, here goes … (Click to read on)

F*ck Me, I did it!

Fuck me, I did it! For the first time in 8 years – I finally went ‘out out.’

… And it was perfect!

Though, the anxiety and turmoil I experienced in the lead up to this night out – was most definitely – NOT perfect. Read on for both the turmoil and the terrific!

ME/POTS and going ‘out out’…

… ‘Out out’ of my mind with worry that is.
It’s a fellow mummy friend’s birthday in a few days, and she’d like to let her hair down. And the best place to do this where we live is – a one-hour train ride away – in the city. What could possibly go wrong? Well, umm, with ME/POTS … everything.