The Dreaded Christmas To-Do List:
– Is yours a) long and unmanageable, or b) short n sweet?
– Do you feel a) overwhelmed, or b) in control?
– Are you a) at risk of crashing/relapsing, or b) pacing and resting properly?
If you answered ‘a’ to any of the above and happen to suffer with M.E/POTS, then it’s probably time to dial things down.
However, if you’re anything like me … you won’t.
There’s so much to consider when going to a concert with chronic illness – especially if your health makes prolonged standing impossible, you suffer from sensory overload, and you might not even be well enough to get there on the day at all.
So, what happens when you have ME/POTS and your all-time favourite band of thirty years comes to town?
This is the predicament I found myself in recently. Read on to learn how it panned out!
Navigating friendships with chronic illness can really suck balls. You don’t want to seem flaky and unreliable, and they want concrete plans to look forward to without you cancelling on them. It’s an ongoing challenge, requiring flexibility and understanding on both parts. Here, I discuss what I’ve learned so far.
‘Hey O! Look at meeeeee! I’m such a cool Mummyyyyy …. !!’
…. SPLAT.
So, my latest boom involved a skateboard, a massive ramp – and a bust with a twist. (Well, a sprain.) Read on for the full story!
‘I’m going on HRT so I can find out if the problem is M.E, myself … or YOU.’
This is what I told Pete recently, after he enquired about my recent doctor’s appointment to discuss if I might be perimenopausal and if it’s worth trying HRT.
Except, with chronic illness thrown into the mix … it gets a bit messy.
Click on the link to read more!
Hello my lovelies and welcome new subscribers!! I realised that I haven’t introduced myself properly in a very long time – and although you can read about me in the aptly named ‘About Me’ section of the website, I thought it might still be nice to give a little wave and tell you a bit more about myself here too.
Newly diagnosed with ME? I covered a lot of the main ‘must know’ points in my last post – however, as I lay in bed on Saturday afternoon, feeling all the ‘feels’ after letting a friend down because I wasn’t well enough to meet – I realised a few points I hadn’t mentioned.
Newly diagnosed with ME?
Wish you had a clue of what to expect going forward?
I was in that boat too once. It’s crap and I’d really like to help.
Here, I share all the things I’ve learned and wish I’d known from the start …
Initial DNA results from the world’s largest DecodeME study are in – and the results are rather marvellous indeed! People with ME have every reason to feel hopeful for a brighter future. So … why do I feel so ‘meh’ about it?
“It’s really good after all these years and everything we’ve been through, that we can still vaguely enjoy each other’s company.” ~ Pete.
Now, these are definitely not the most romantic utterings I’ve ever heard. However, with ME/POTS hanging around like a bad smell all the time, I’ve come to realise that ‘vaguely enjoying each other’s company’ is actually something to be celebrated. Read on to find out why.